June 11, 2012
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Update on Mom
Mama seems to be slowly going downhill. She seems strong, but she is having great difficulty swallowing. Martha has been with her six out of eight days. She said at times she has had to lay her down to get her to swallow. And, believe me, we try everything. Sandra ordered thickening for her fluids, and Martha said it has made no difference. It really worries me. Martha talked to me on her way home last night telling me about her desperate pleas to God for Mama to be able to swallow and not go thru that. But, she seems to slowly be getting to that point. I cry as I type this. I cry for Mama--that sweet, gentle, delicate soul going thru this terrible world of alzheimers disease. We think maybe she is not sleeping well and it affects her thinking. I don't know.
The other day I read something profound that Martha had written in Mama's Journal. If you are squeemish about anything, PLEASE do not read this. Oh, and I am leaving out the name, because this person is a dear friend to us.
X came to visit and Mama had diarrhea. As sweet as it is for everyone to love Mama, company always makes it difficult! She is more distracted & doesn't cooperate as well when someone comes, family included!! I tried to subtly mouth to X that Mama had diarrhea and I was sorry it may take a while. It did take a while! We sang "Glory to His Name" while she finished & I got her clean again. By the time we made it back to the living room, X had to leave. They hugged us all. X told Mama how much she loves her & misses her & Mama would reply "Thank You!" I just looked @ Mom after they left trying to see her the way they see her. So very sad!! I could tell X was very sad about Mama. We see through such carnal eyes! I know this is not our home. We were made to be with Jesus someday. I am constantly praying & trying to improve life for Mama here & I think that's great. I just have to remember what I know Mama's goal is. And that is to be with Jesus! X thanked me for taking such good care of Mama. She says something that always bothers me tho'. She says she is not a caregiver & she admires us for taking care of Mama. One thing I have learned going thru this w/Mama. Taking care of Mama doesn't require qualifications or expertise. It just takes effort, patience, & a lot of love. Anybody can do it! Few people choose to. I'm thankful for the desire God gives me to try my best, even when lots of times I am sorely lacking!!
I read this poem to Martha that Mymanyblessings posted on her blog. She cried as I have, seeing my mom thru the words. It was supposedly written by a man in a nursing home in Australia. They found it in his possessions after he passed away. I am going to repost it, in honor of Mom.
Cranky Old Man......
What do you see nurses?.......What do you see?
What are you thinking...............when you're looking at me?
A cranky old man,.....................not very wise,
Uncertain of habit......................with faraway eyes?
Who dribbles his food.............. and makes no reply.When you say in a loud voice...'I do wish you'd try!'
Who seems not to notice...........the things that you do.
And forever is losing...................his sock or shoe?
Who, resisting or not...................lets you do as you will,
With bathing and feeding............the long day to fill?

Is that what you're thinking?........Is that what you see?
Then open your eyes, nurse......you're not looking at me.
I'll tell you who I am.......................As I sit here so still,
As I do at your bidding.................as I eat at your will.
I'm a small child of Ten................with a father and mother,
Brothers and sisters.....................who love one another
A young boy of Sixteen................with wings on his feet
Dreaming that soon now..............a lover he'll meet.
A groom soon at Twenty..............my heart gives a leap.
Remembering, the vows..............that I promised to keep.
At Twenty-Five, now......................I have young of my own.
Who need me to guide................a secure happy home.
A man of Thirty...............................My young now grown fast,
Bound to each other.....................With ties that should last.
At Forty, my young sons...............have grown and are gone,
But my woman is beside me........to see I don't mourn.
At Fifty, once more,.......................Babies play 'round my knee,
Again, we know children.............My loved one and me.


dark days are upon me..............My wife is now dead.
I look at the future.........................I shudder with dread.
For my young are all rearing......young of their own.
And I think of the years................And the love that I've known.
I'm now an old man.....................and nature is cruel.
It's jest to make old age...............look like a fool.
The body, it crumbles.................grace an vigour depart.
There is now a stone..................where I once had a heart.
But inside this old carcass..........A young man still dwells,
And now and again....................my battered heart swells.
I remember the joys....................I remember the pain.
And I'm loving and living.............life over again.
I think of the years, all too few....gone too fast.
And accept the stark fact............that nothing can last.
So open your eyes, people.......open and see.
Not a cranky old man.................Look closer
see...............................................Me!!
Comments (9)
Love the pictures. Thanks so much for sharing them. It is so sad to see her go through that. I know I am having troubles with Uncle Roy......not alzheimers but he is going down hill so fast lately. He can't see and we got him books on tape and books for the blind at the library. He enjoys that. He sometimes has the TV on but said he can no longer see it, just listens. He has been counting his steps from his room or from the office to the kitchen. He tries to interact with baby girl but can no longer see her features, said her face is all shadows. I sometimes get frustrated with him but every night I pray that I can see Uncle through His eyes and for more patience. It is hard but you are doing a wonderful job......I should be so diligent!
@oldfatgramma - I cannot imagine not being able to see. Bless his heart. I understand your frustration, tho. Sometimes inside myself I feel like screaming because I cannot get Mom to swallow. I get inspiration from my sister, Martha. She has such love, care and compassion and it makes me want to have that too. A lot of times I pray that I will love Mom like Martha does. :) Life is so very sad!!
You did your mom proud...this fits in so well with what you all are going through...I want to mention something. When you have family who are sick and battling some sort of disease...you can do whatever it takes to take care of them. My mom who was very squeemish prayed for God's guidance when my poor dad was dying with lung cancer. She had to change him & take care of him and she told me that only by the grace of God could she do it. My dear sister who fought for 5 years with Ovarian Cancer had to wear a colostomy bag because the cancer was so bad it was eating through her stomach...yes squeemish & all we loved her enough to take care of her ourselves. I know not all folks can do that...but...by the Grace of God we can do anything. They are both living with Jesus now & it was hard but we all have to go through this dreaded pain...only by the grace of God. I pray that you, & your sister, and all your family know that God is carrying you through every step of the way. I have you close to my heart, & in my prayers...that your sweet mother will swallow & that God has her wrapped in his loving arms through out this process that your going through & that she has no type of suffering. God bless you Susan & your family
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@Mymanyblessings - Your comments have really, really blessed me. I agree with you. By God's grace we can do what we need to do. Some days it bothers me more than other days. But even on the bad days, I love her so much I do what has to be done. Your family sounds like a wonderful family!! I think we need more families willing to take care of their own.Thank you so much for your uplifting words.
I love what Mymanyblessings said. I'm so sorry you're going through that with your mom. It has to be heartbreaking to see her go downhill like that. It's difficult for me with my mom, because we're never sure if she's acting like she doesn't know what's going on or if she truly doesn't know. She plays a lot of head games and it makes it very difficult.
I'm praying for your mom and that the Lord will touch her and heal that part of her mind, so she can swallow. ((((big soft hugs))))
There are many times I do wonder what Mom is thinking. Life can be so cruel but we still have hope of a better life. Thank the Lord that I know where Mom is going. This poem reminds me so much of Mom and I must say that I cried as I read it too. We will never be sorry for anything we have done for her. Love you!
@SealedbyGrace - I totally understand what you mean about your mom. You have been thru some really hard things with her. Its really sad and I feel for you. I know it must be so hard.
Thank you so, so much for your prayers!! I am afraid for her to reach the next stage.
@zchryfamily - I wonder what she thinks too. Sometimes she says "I've been thinking about.......", and is unable to finish. A lot of times I think she understands more than we realize (but not always, of course). Yes, I too am so thankful to know she is on a road to heaven, but life sure is hard to understand. Love you guys too!
Well.........
I had to stop reading the poem. I will go back to it when it can read it thru dry eyes. I am sitting here at 4AM, not able to sleep cause I take Mom to the hospital in a few hours. I got on here to try to catch up with everybody and I am just not up to it but wanted to check in on you. Know that I think of you OFTEN. VERY OFTEN.
Say a prayer for me as I pray for you. I tried having a panic attack earlier. And I know its from the thoughts of going to the hospital. It ALWAYS brings that out in me.
Love you Susan! You and your sisters truly make God proud. I know there are days that seem so long. Keep the faith and keep your chin up. Wished I could hug you!
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